Home
Why Your Voice Matters
Updates & Resources
Get Involved
Home
All Posts
video
video
Not Too Rare To Care
Sign The Petition
Home
Why Your Voice Matters
Updates & Resources
Get Involved
Meet Deacon – Moments that Matter
not2rare
August 14, 2023
Learn More
Meet Abe – This is His Story
not2rare
July 16, 2023
Learn More
Meet Connor – A Kid with a Deadly and Invisible Disease
not2rare
August 15, 2016
Learn More
Δ
×
Sign up for advocacy updates
Δ
×
You are now being redirected to the Barth Syndrome Foundation’s Petition on
Change.org
Continue
×
You are now being redirected to the Barth Syndrome Foundation’s Petition on
Change.org
Continue
×